-CNN-IBN It's lunch time in Bundelkhand's Gudrampur village. Shyama knows the four hungry children waiting patiently will soon be restless. She is glad her sister-in-law Chunni Bai is helping. She is expecting her third child and pregnancy makes her tire easily. In the ninth month now, it's impossible to trek the 10 km circuit to collect firewood from Kadhaili and then sell it at the Fateganj market. She would make Rs 25...
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‘Policy on rare diseases will make treatment affordable, inclusive’ -Cinthya Anand
-The Hindu Patients face discrimination because public health systems and schools are not equipped to deal with the problem Bengaluru: “The cost of my daughter's treatment is around Rs. 1 crore per annum. If it were not for the aid of a United States-based foundation, I would not be able to help her,” said Prasanna B. Shirol, founder-director, Organisation for Rare Diseases India. His teenage daughter suffers from Pompe Disease, a rare...
More »The budget’s dangerous philosophy -Harsh Mander
-Livemint.com The government relies on for-profit big business to deliver public goods despite their inability to deliver Can we listen to the budget as an annual public statement by the government of its economic and social philosophy and intent? The centre abandoned five-year plans that earlier laid down a road map of where government policies are headed. The budget, then, is an important reality check of whether the government is literally...
More »Policy shame: sick, rare and ignored -Shilpi Bhattacharya
-The Hindu If the Indian government is serious about its commitment to realise the rights of its citizens to universal and equitable health care, it cannot ignore rare diseases. The draft National Health Policy, 2015, makes no mention of them Rare diseases are a diverse set of over 7,000 different conditions that afflict an estimated 1 in 20 Indians and 350 million people worldwide. Put simply, it means that every bus on...
More »Political expediency wins over cooperative federalism -Nitin Sethi & Ishan Bakshi
-Business Standard Cess, surcharges come in handy New Delhi: Looking to leave its political imprint over spending in rural India, the National Democratic Alliance (NDA) government has budgeted for a massive 31 per cent hike in its share of spending on nine big-ticket centrally sponsored schemes (CSS) in 2016-17 over last year's budgetary allocation. Last year's Budget mantra of 'cooperative federalism' has been sidestepped to favour political exigencies. To fund these schemes, which...
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