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‘Policy on rare diseases will make treatment affordable, inclusive’ -Cinthya Anand

-The Hindu Patients face discrimination because public health systems and schools are not equipped to deal with the problem Bengaluru: “The cost of my daughter's treatment is around Rs. 1 crore per annum. If it were not for the aid of a United States-based foundation, I would not be able to help her,” said Prasanna B. Shirol, founder-director, Organisation for Rare Diseases India. His teenage daughter suffers from Pompe Disease, a rare...

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Social audit of MGNREGA conducted in one-third of districts

  Social audit is an important tool not just to ensure transparency and accountability in the MGNREGS, but also for successful running of the programme. The MIS (Management Information System) data provided by the website www.nrega.nic.in reveals that at the national-level roughly one-third of all districts were covered under social audit during the financial year 2015-16, as on 26 March, 2016. The top 5 states during 2015-16 (FY) in terms of the...

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The downside of govt's social sector push -Nitin Sethi

-Business Standard While allocations to several social sector schemes have been increased, concerns about the direction of the funds being ploughed remain The health and education sectors have trudged along the last two years awaiting direction that would be set through new policies the National Democratic Alliance government promised. In the absence of these guiding documents, most observers have been left to read the intermittent policy decisions like tea-leaves to guess the...

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The return of paternalism -Neera Chandhoke

-The Hindu The steps taken towards social democracy are being reversed. What we have now are social insurance policies from above. This subverts the entire project of giving voice to the voiceless. India has paid a heavy price for failing to institutionalise social democracy It is generally agreed that theories of social democracy, in comparison to theories of formal political democracy, take cognisance of background inequalities that hamper the realisation of basic...

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The embroiders of Kutch -Lyla Bavadam

-Frontline The Living and Learning Design Centre in a Kutch village is about dialogue between contemporary designers and traditional artisans and about keeping crafts relevant. Kutch: “WHY here? Why a design centre of such sophistication in a small village off a highway?” The answer flashes in one’s mind at the same time: “Because that’s the most logical and relevant place for it.” The answer is validated a while later in a...

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