-Frontline A Delhi High Court verdict says the State government is bound to ensure that poor and vulnerable sections of society have access to treatment for rare and chronic diseases. SEVEN-YEAR-OLD Mohammed Ahmed Khan looked on helplessly as his father, Sirajuddin, narrated the sordid tale of the loss of four of his children to Gaucher's disease, a rare genetic disease that requires lifelong, exorbitantly expensive enzyme replacement therapy. Sirajuddin, a rickshaw...
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Disabilities of our democracy-Jayna Kothari and David Seidenberg
-The Hindu When an electoral system structurally discriminates against particular categories such as persons with disabilities, it is tantamount to a failure of the democracy as a whole The citizens of India are in the process of casting their votes in what is being widely hailed as the largest election in human history. By sheer size, the 16th Lok Sabha elections signal a triumph not only for India, but for democratic exercises...
More »India: Marginalized Children Denied Education- Use Monitoring, Redress Mechanisms to Keep Pupils in School
-Human Rights Watch New Delhi: School authorities in India persistently discriminate against children from marginalized communities, denying them their right to education, Human Rights Watch said in a report released today. Four years after an ambitious education law went into effect in India guaranteeing free schooling to every child ages 6 to 14, almost every child is enrolled, yet nearly half are likely to drop out before completing their elementary education. The...
More »Respect right of persons with disabilities to make their own choices, urges UN panel
-The United Nations People with disabilities have the same rights as everyone to make decisions about their lives, including the right to take risks and make mistakes, a United Nations committee has stressed in new guidelines. "Respect for the freedom to make choices should be accorded to all persons with disabilities, no matter how much support they need," said Theresia Degener from the Committee on the Rights of Persons with Disabilities (CRPD). "People...
More »‘End manual scavenging in Pandharpur’-Vinaya Deshpande
-The Hindu Mumbai: Taking serious note of manual scavenging in the pilgrim town of Pandharpur here, the Bombay High Court on Wednesday directed the State government to release Rs. 5 crore immediately to the municipal council to help deploy mobile toilets on a war footing. The government should file a compliance report by May 8. "How can you justify employing human beings to carry out manual scavenging in this day and age?...
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