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‘Policy on rare diseases will make treatment affordable, inclusive’ -Cinthya Anand

-The Hindu Patients face discrimination because public health systems and schools are not equipped to deal with the problem Bengaluru: “The cost of my daughter's treatment is around Rs. 1 crore per annum. If it were not for the aid of a United States-based foundation, I would not be able to help her,” said Prasanna B. Shirol, founder-director, Organisation for Rare Diseases India. His teenage daughter suffers from Pompe Disease, a rare...

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The downside of govt's social sector push -Nitin Sethi

-Business Standard While allocations to several social sector schemes have been increased, concerns about the direction of the funds being ploughed remain The health and education sectors have trudged along the last two years awaiting direction that would be set through new policies the National Democratic Alliance government promised. In the absence of these guiding documents, most observers have been left to read the intermittent policy decisions like tea-leaves to guess the...

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LPG for every Indian household -Abhishek Jain

-The Hindu The Pradhan Mantri Ujjwala Yojana scheme, which recognises the importance of clean cooking energy, is welcome. But we need to focus on issues of cash flow, awareness, availability and administration Within a fortnight of the recently announced Union Budget, the Cabinet Committee on Economic Affairs approved the Pradhan Mantri Ujjwala Yojana, earmarking Rs. 8,000 crore for it, with the aim of providing five crore subsidised Liquefied Petroleum Gas (LPG)...

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Standing up to patent bullying -Srividhya Ragavan

-The Hindu The Modi government must stop engaging U.S. bureaucrats as patent consultants and instead showcase the Indian patent statute as an exemplar for a balanced regime Earlier this month, the media reported that India “privately” assured the United States that it will not issue any more compulsory licenses. This report was reminiscent of a theory propounded by psychologist Lenore E. Walker in 1979 on abusive patterns in relationships. Four stages of abuse Walker...

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Enemy At The Aadhaar Gates -Gopal Krishna

-Outlook The structural basis is being laid out for future authoritarianism at the behest of foreign biometric and surveillance technology What distinguishes Barack Obama and David Cameron from Narendra Modi? Obama and Cameron oppose biometric identification but Modi supports it. On 11 May 2005 in the US, the Real ID Act for a national ID was rushed through US Congress and the US Senate with utmost urgency, a legacy of George Bush...

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