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‘Policy on rare diseases will make treatment affordable, inclusive’ -Cinthya Anand

-The Hindu Patients face discrimination because public health systems and schools are not equipped to deal with the problem Bengaluru: “The cost of my daughter's treatment is around Rs. 1 crore per annum. If it were not for the aid of a United States-based foundation, I would not be able to help her,” said Prasanna B. Shirol, founder-director, Organisation for Rare Diseases India. His teenage daughter suffers from Pompe Disease, a rare...

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The downside of govt's social sector push -Nitin Sethi

-Business Standard While allocations to several social sector schemes have been increased, concerns about the direction of the funds being ploughed remain The health and education sectors have trudged along the last two years awaiting direction that would be set through new policies the National Democratic Alliance government promised. In the absence of these guiding documents, most observers have been left to read the intermittent policy decisions like tea-leaves to guess the...

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Patented Patriotism -Kalyani Menon-Sen

-Kafila.org The last few months have seen an unusual public engagement around questions of secularism, freedom of speech, sedition and the like, with furious debates everywhere from our campuses, streets and TV studios to the floor of Parliament. The budget session has been enlivened by scenes of high drama, with the leading lights of the Treasury benches bringing colour, sound and fury to their tutorials on patriotism and nationalism. While these high-decibel...

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The return of paternalism -Neera Chandhoke

-The Hindu The steps taken towards social democracy are being reversed. What we have now are social insurance policies from above. This subverts the entire project of giving voice to the voiceless. India has paid a heavy price for failing to institutionalise social democracy It is generally agreed that theories of social democracy, in comparison to theories of formal political democracy, take cognisance of background inequalities that hamper the realisation of basic...

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Political expediency wins over cooperative federalism -Nitin Sethi & Ishan Bakshi

-Business Standard Cess, surcharges come in handy New Delhi: Looking to leave its political imprint over spending in rural India, the National Democratic Alliance (NDA) government has budgeted for a massive 31 per cent hike in its share of spending on nine big-ticket centrally sponsored schemes (CSS) in 2016-17 over last year's budgetary allocation. Last year's Budget mantra of 'cooperative federalism' has been sidestepped to favour political exigencies. To fund these schemes, which...

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