-Frontline A Delhi High Court verdict says the State government is bound to ensure that poor and vulnerable sections of society have access to treatment for rare and chronic diseases. SEVEN-YEAR-OLD Mohammed Ahmed Khan looked on helplessly as his father, Sirajuddin, narrated the sordid tale of the loss of four of his children to Gaucher's disease, a rare genetic disease that requires lifelong, exorbitantly expensive enzyme replacement therapy. Sirajuddin, a rickshaw...
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Another ‘Gujarat model’-Anupama Katakam
-Frontline A study on untouchability practices in 1,589 villages in Gujarat provides critical data for the Dalit movement to shape its interventions at the national and international levels. DESPITE laws making it punishable, untouchability continues to exist in the country in a vicious manner. A study titled "Understanding Untouchability: A Comprehensive Study of Practices and Conditions in 1,589 villages", conducted in Gujarat by the Navsarjan Trust, an organisation that promotes the...
More »Alice Bayer, Press Officer Survival International (INGO) speaks to G Vishnu
-Tehelka Survival International is an NGO that works for the welfare of indigenous tribal populations all over the world. Recently, it launched the Proud, Not Primitive campaign in India. Survival’s press officer Alice Bayer was in India to spread the word. Speaking to G Vishnu, she spells out what is wrong with the development versus tribal rights debate. Edited Excerpts from an Interview * Tell us about the Proud, Not Primitive campaign? Government...
More »Delivering safety -Kundan Pandey
-Down to Earth All safe motherhood programmes of the government are focused on institutional deliveries, but health centres are in disarray. Experts suggest ways to reduce deaths during delivery Lal Mohan, a daily wage labourer, has no clue what took his wife's life. Sarita Devi, 25, was expecting her third child, and was on way to a good hospital at Bhagalpur district in Bihar. "She was normal all through the nine months...
More »Disabilities of our democracy-Jayna Kothari and David Seidenberg
-The Hindu When an electoral system structurally discriminates against particular categories such as persons with disabilities, it is tantamount to a failure of the democracy as a whole The citizens of India are in the process of casting their votes in what is being widely hailed as the largest election in human history. By sheer size, the 16th Lok Sabha elections signal a triumph not only for India, but for democratic exercises...
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