-Frontline A Delhi High Court verdict says the State government is bound to ensure that poor and vulnerable sections of society have access to treatment for rare and chronic diseases. SEVEN-YEAR-OLD Mohammed Ahmed Khan looked on helplessly as his father, Sirajuddin, narrated the sordid tale of the loss of four of his children to Gaucher's disease, a rare genetic disease that requires lifelong, exorbitantly expensive enzyme replacement therapy. Sirajuddin, a rickshaw...
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Chasing the Certificate That Enables
-Economic and Political Weekly Disabled citizens face a traumatic time procuring the crucial disability certificate. Among the tasks that fill most Indians with dread is the act of procuring the all-important identity and eligibility documents so dear to the Indian bureaucracy. Imagine the plight of disabled citizens for whom getting a disability certificate that officially recognises their disability and medically ranks it in percentage terms has long been a nightmarish experience. Yet,...
More »Delivering safety -Kundan Pandey
-Down to Earth All safe motherhood programmes of the government are focused on institutional deliveries, but health centres are in disarray. Experts suggest ways to reduce deaths during delivery Lal Mohan, a daily wage labourer, has no clue what took his wife's life. Sarita Devi, 25, was expecting her third child, and was on way to a good hospital at Bhagalpur district in Bihar. "She was normal all through the nine months...
More »Even after 2 years, Kokrajhar lives in shadow of violence -Furquan Ameen Siddiqui
-The Hindustan Times Kokrajhar (Assam): Nearly two years after deadly ethnic riots led to more than 100 deaths and displaced over 4.5 lakh people in Kokrajhar region of Assam, fear and tension prevails. Communities - especially, the Bodos and Bengali-speaking immigrant Muslims - living in close proximity across the Bodoland Territorial Autonomous District appear to be completely polarised. In the small village of Joyma a few kilometres from Gosaigaon, around 150 Bengali-speaking...
More »Lok Sabha polls 2014: Why is climate change not an election issue?-Apurv Kumar Mishra
-DNA The Indian political class is completely disengaged with the environment because the issue does not get votes. And the poor, who will be the most affected by climate change, are mostly unaware about it, though it is an existential issue for our country. In William Shakespeare's play Julius Caesar, a series of bizarre events happen in Rome before Caesar's assassination, leading a soothsayer to warn him: "Beware the ides of...
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